Monday, August 17, 2009
Ups and Downs. Sure is a rollercoaster.
So many things have happened since my last post. Sorry I haven't been posting much. Hailey got extubated (breathing tube out) a week ago today. they ended up putting it back in only 17 hours later because her lactate levels were up to 13. They should be around 1 or less. So she recovered for about 2 days and then on Thursday August 13th they pulled her tube again. This time her lactate levels were great up until last night. They went up to 8.6 and she was having a little trouble with her heart rate. So the breathing tube went back in at 6 this morning.
It's just so hard right now to see her with that tube back in. Over the weekend she was starting to act like a "normal" baby. She was looking around and making the cutest cooing sounds and seemed very happy and content. There was even talk about moving to the next floor and starting her swallow study since she was doing so well. Now it's another huge step backwards.
There was even talk this morning about her leaky valve that could be causing her to not do well off the ventilator. If this is the case, she may have to stay in the hospital until her next stage, The Glen. Which would be mid to late October. I really hope that's not the case, I really miss being home with my family and we just want to take Hailey home to be with us. It's so incredibly hard right now. I just hope and pray we can take her home soon. Please pray for our little angel. I posted a picture of her from last night when she was cooing at us. I hope to be able to post another one like this soon if she can manage without her tube.