Living life after losing our first child to Hypoplastic Left Heart Syndrome.
Sunday, November 29, 2009
A little too late for me, but maybe there is hope for others who are reading.
Children's Hospital of Boston is conducting a clinical trail in which they do heart surgery while the baby is still in the womb! They have determined how HLHS begins - it begins as Fetal Aortic Stenosis, and develops into HLHS as the baby develops. By inserting a needle through the mother, into the womb, and into the fetus, doctors have been able to open the small Aorta. They have done this 70 times and relieved the effects of HLHS 51 times. And 17 of those children have been born with two functioning ventricles!
Yes, it is still an experimental procedure, but they are showing decent results, and perhaps it is a prelude to the future.