Living life after losing our first child to Hypoplastic Left Heart Syndrome.
Tuesday, November 24, 2009
So very scared
In addition to Hailey's Glenn today, she will also be getting her tricuspid valve replaced with a mechanical valve. It is so rare to have these valves in babies Hailey's size, they searched high and low just for her and founhd her a valve (which costs close to $20,000!!! Thank god for insurance!). This also increases the mortality rate to 40% from this surgery. pray pray pray for little Hailey. Here is a picture of her new valve.
I'm so scared that she may not come back from the OR today. They are currently placing all her IV lines and the actual surgery will begin around 10:30 pacific time. I will post another update as I get them.