Hailey had a bad night last night. Around 2:30am sirens started going off like crazy. I was in the room with her and jumped up as they were giving her chest compressions and breathing for her. Her blood pressure dropped and her saturations were down to 30. Her pacemaker kept her heart rate at 100bpm, but she couldn't get it any higher on her own. After several minutes of this, she finally recovered. They believe it was pulmonary hypertension. So right now she is heavily sedated and no one is allowed to touch/stimulate her until she has recovered more. There was even talk about going back on ECMO if her saturations did not improve by this afternoon. She managed to get them back up just before the afternoon to avoid ECMO.
Please send out your thoughts and prayers that she continues to improve and do well. We want to take our girl home by Christmas.