So after 2 conferences with the cardiologists and with Stanford, we have decided to stay here at Doernbecher's for Hailey's next surgery. It will be in her best interest as a heart transplant won't work well with Hailey. Stanford also wants to be too aggressive and try and fix too many things at once where Dr Armsby and Langley here would be a lot more careful and only fix the 3 things needed at this time, saving the other 2 for her Fontan surgery in a couple of years.
If she were to wait for a heart in Stanford, their average wait time is 4+ months. That is not fair to Hailey, especially if she can't wait that long. We would rather have her here close to home. That way if anything were to happen, we will be very close by. If something bad were to happen while at Stanford, Josh may not make it in time with trying to get on an airplane to be with us.
The doctors here at Doernbecher are in a meeting about Hailey as I write this. They are making decisions and thinking of a date for her surgery. I will post more after they get out of their meeting and come speak to us.
I am glad to hear that you have some definite plans for Hailey. It is always so much harder when you don't know for sure what is happening. I will continue to pray for her and your family as you go through the process and especially when she heads in for her surgery.
ReplyDeleteI'm so happy to hear that you don't have to make the trek to Stanford. I'm sure you would rather stay with the doctors you are comfortable with and know whats best for your daughter. How ironic that Hailey and Aly will be having their surgeries at almost the same time! I know this will be a rough couple of weeks for both of our families but with how strong our little girls are I'm sure they will do great! Hopefully this will be the last step Hailey needs to get to go home!! I will keep you and your family in my thoughts and prayers next week!
ReplyDeleteWe will keep Hailey in our prayers! And glad to hear she and you will stay close to home, you all need to be together right now.
ReplyDeleteJennifer
"Colin's mommy"
Will be praying for your Hailey and her docs involved.
ReplyDeleteLooks like the cards are all falling into place in a way that's most comfy for Hailey and you all! Being close to home is always less stressful and less stress is best in these situations. God bless you guys!
ReplyDelete