Looks like we will be off to Stanford within the next week. Hailey will be having her Glenn procedure down there because her first open heart left her on ECMO, they are afraid she may be on it again after her Glenn. This Glenn is not the typical Glenn either, it's much bigger. They will be fixing two leaky valves, her aortic arch, a few arteries, and doing the Glenn. All on one surgery! So if she does end up on ECMO, it will be much easier for her to already be at Stanford. She will be getting a transplant if things don't go well during this surgery and transporting a baby on ECMO from Portland to Stanford is not a good idea. So it's best for her to be in the right place to start off.
Other than that, Hailey is doing amazing. She is bringing objects to her mouth and chewing on them (great hand eye cordination) and she is starting to drink small amounts from a bottle as well. She is acting like a normal baby and I just love getting to cuddle with her on my shoulder, she falls asleep everytime! I am not looking forward to seeing her go through another surgery, but hopefully this will be the last one for a long time. Please pray for Hailey that she makes it through her Glenn without being on ECMO.
I will update more throughout the week as we get more information as to when we would be leaving.
I am keeping Hailey in my prayers that she won't be stuck on ECMO and that her Glenn (and other repairs) are textbook and she recovers in record time. My thoughts and prayers are with her and your whole family.
ReplyDeleteShe gets more adorable with every post! Look at those chubby little cheeks! I'm so glad to hear that they have found an alternative to going straight to the transplant. I will keep Hailey in my thoughts and prayers and hope for a speedy recovery so you can take your girl home!!
ReplyDeleteHi I will be looking for your next update. I was wondering though, your profile said you guys are form Olympia, why did your doctors decide on Portland rather than Seattle?? If you are still in Olympia, after Hailey's surgeries we should get together. We are on Fort Lewis and go to Seattle for our surgeries.
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